elder-helper

Resources

Below are useful resources for nursing home residents and their families. You will find advocacy groups,
non-profit organizations and local groups to assist you or to just provide you with useful information.

Carenotes t.m.

Carenotes t.m. are well written publications by "One Caring Place" of support literature that bring
messages of hope and compassion to those in need.
Below are excerpts from just a few of the many booklets, reprinted with permission.

From "When a Loved One Has Alzheimer's" by Mary Frances Baugh and Mary Blessing.
"…Accept that your loved one may need care that you cannot personally provide. It often takes a crisis
to admit that we can no longer handle the daily care of an Alzheimer's patient…"

From "Making the Most of Nursing Home Life" by Nancy T. Stout
"…When a member of the family moves into the nursing home, it is common for others in the family to
feel some guilt. Perhaps you feel bad about not being able to care for your loved one at home…"

From "Turning to a Chaplain for Care and Support" by Patti Normile
"…Listening is one of the most precious gifts a chaplain can offer. Emotions can become scrambled
when your under stress or faced with the uncertainty of what illness or injury means…"

If you are a family member of a loved one in a long term care setting or you are a provider and you are
interested in purchasing Carenotes T.M. click this link.

The mission of the National Committee to Preserve Social Security and Medicare (NCPSSM) is to
preserve social security and Medicare for current users and future generations. To learn more, click this
link.

http://www.ncpssm.org

For families affected by Alzheimer's disease, see the group information below.
Alzheimer's Disease Education and Referral Center (ADEAR)
PO Box 8250
Silver Spring , MD 20907-8250
800-438-4380 (toll-free)
www.nia.nih.gov/alzheimers

The national consumer voice for quality long term care (NCCNHR) is an organization that advocates for
education and improved quality in long term care. Follow the link below.
www.nccnhr.org

Your greatest advocate for long term care residents (besides the state attorney general) is your local
ombudsman. Ombudsman will Advocate for residents' rights and quality care; educate families and
facilities; help resolve issues and complaints; educate the public. See the link below.
http://www.ltcombudsman.org/

For access to federal websites there are several. CMS stands for Centers for Medicare and Medicaid
services. This is a division of the department of Health and Human services (HHS). These links will take
you to the federal government websites. There is a lot of information and it can be a bit overwhelming
www.cms.gov www.nia.nih.gov and www.medicare.gov

American Association of Homes and Services for the Aging is an organization that advocates for
issues that affect the aged. It is topical and addresses many issues including health care reform. Visit by
clicking the link below.
www.aahsa.org

Having trouble finding a local Hospice? See the link below.
http://www.hospicepatients.org/findhospice.html